Many People with Parkinson’s Live Excellent Lives
Joe Biden’s voice was hoarse in the June 27 presidential debate. He had difficulty completing his thoughts. Speech and cognitive symptoms are common signs of Parkinson’s Disease. Questions were raised. Reporters dug up that Parkinson’s disease specialist, Dr Kevin Cannard, had met three times with Biden’s physician, Dr Kevin O’Connor, at the White House earlier this year.
I admit that I was among those who speculated that Biden could have Parkinson’s. Although there is no definitive test, some forms of Parkinson’s are easy to diagnose. I know because in March of this year, a ten-minute assessment by a neurologist led to my diagnosis of Parkinson’s. I am now primed to spot symptoms of Parkinson’s in myself. I quickly assumed it was true for Biden. I was wrong. The general speculation was wrong. Dr. O’Connor released a letter stating that an “extremely detailed neurologic exam” found no signs consistent with Parkinson’s or other neurological disorders. Biden does not have Parkinson’s Disease.
I was initially silent about my Parkinson’s diagnosis, telling only family and close friends. I have a shaky left hand, but it is minimized by medication. I am sometimes weak and stiff, but exercise keeps me strong and mobile for now. I anticipate years of good health. I was silent because the diagnosis sounds bad. I was concerned how people would perceive me and how a diagnosis would affect my career.
In a meeting a colleague noticed my shaky hand. Was I nervous, he asked? I mumbled something about a medical condition. I decided then that I did not want a hundred awkward conversations over time. I am in a safe place at work. I felt I could do some good raising awareness. On World Parkinson’s Day on April 11, I went public. I posted to my friends and colleagues on Facebook and LinkedIn. I was widely supported and encouraged. Not everyone enjoys my level of safety or support.
Biden stepped down from his election bid. While it has worked out fabulously for the Democrats, it prompts reflection on the damage it can do to a person. Parkinson’s Disease is a serious and disabling disease, but many people with Parkinson’s live excellent lives. Armchair diagnosis stigmatizes and limits a person based on partial or wrong information.
Biden also made headlines for Parkinson’s on July 2. It had nothing to do with the election or his health. He signed into law the National Plan to End Parkinson’s Act, legislation dedicated to end Parkinson’s. This important and good news deserves everyone’s attention and applause.
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Published on August 10, 2024
Updated on August 10, 2024